New Beginnings

As you know poor Eli has been going through a tough time. Yesterday, his doctor wanted him to go into observation and to be able to make sure his medications are right. We went to a center last evening which they could not take him because of his gtube. Then through random phone calls we ended up at a great hospital we hadn't been to yet who did a follow up with Eli and got him in with a one of the best Psychiatrists in Kansas City that specializes in Autism. Both Michael and I really like her, and Eli seemed to also.
Further, we found out that some of the medications Eli has been may have not either been right for him, or recommended properly. We are very grateful to have someone that seems we will be able to trust and is very careful what she does. I know the next few weeks will be tough on all of us, Especially Eli with the changes... But  we hope he will start feeling better soon.
My mother in law is taking care of my two year old which is such a blessing and we are thankful to be close so we can still see him while Eli goes through a major adjustment this week. I can't wait to have more of my little boy back. It has been so tough, mostly to see how much suffering my little boy has gone through.
And yes, It has made me very angry at times and at a loss but the love and passion I have for my children, there is nothing I wouldn't do. Michael took off work last night to be there for us and went today so I know he is going to be so tired when he gets off of work. He really stepped up and I am so grateful for him being there even though I know he really couldn't afford to take a night off.

Isn't he just so cute!

Eli was in a great mood before going to bed and his little smile and giggles just make my heart melt. I tried to call to say good night to Car, but he had played so hard with his cousins that he passed out. Believe me, when I see him tomorrow he will get so many kisses and hugs he won't know what to do with!=)

Just to Clarify....

My previous post is not a feel sorry for me entry. It is something that I have been given to deal with.
Last weekend I went out with the girls for the first time in years. It was really nice and I appreciate the chance to do that. This is no more then an Autism thing though.
Eli's behaviors have gotten worse and I am just in the next step of adjusting and poor Carter is in the middle of it all. Remember I said that I was going to get Eli in with a psychiatrist at Children's Mercy?
Well, they called me back and referred me to another behavior clinic because they didn't think they could help my son. This even is with the fact that I told them I got them through a patient reference! Another child with autism gets all his medications taken care of through them and yet they can't help my son? If Children's Mercy says they can't help me then who can? It's not like they are referring me to a different specialist or they have to long of a wait list, they simply just didn't want to deal with it. So yes, I am mad and frustrated. I'm tired of doors being closed because of money, or the long wait lists, or simply because my child is one of thousands dealing with Autism and they simply just don't want to deal with it.

Off Winter Break!

I am so happy that my son is finally going back to school today and we can get back into schedule. It has been so hard for him being on winter break. I think unless you have a child on the autism spectrum, it's hard to understand how tough this adjustment can be. I look forward to his day today and hope he has a good one!
This morning I was able to call the children's hospital and left a message for them to get back with me. Eli has been on meds since he was two years old but no one ever told me that there was a child psychiatrist he could go to! Instead, a general doctor or developmental pediatrician has been handling them and well, it has been tough. For Eli, he needs someone who can watch him closely. We have been in the hospital many times because of off or bad reactions. I really don't want him on medication at all but he can't function without something. Anyway, look forward to seeing when I can get him in. This should make things much simpler.